Book By Teen With Cystic Fibrosis Becomes National Bestseller

Related: health

In other Claire's Place Foundation news, Claire's new online tutorial for youths fighting Cystic Fibrosis, CF University, developed and donated by Mark Kaplan of Kaplan Digital, has recently launched. The online hub assists others dealing with CF by providing information, tools and techniques for dealing with everyday life with the disease. Here users will have everything from craft ideas when you are stuck at the hospital, tips on traveling with an illness, decoding "doctor talk," connecting CF families with each other, and tips for finding support and resources.

"Sharing everything I have learned, and providing a forum for positive and supportive members to share their experiences in a space that is open and fun for everyone, is our goal with CF University. Cystic Fibrosis is a roller coaster, but hopefully CF University can give and share some of the tools, the laughter, and the knowledge you need to get through it all," said Claire.

Claire's Place Foundation, Inc. is a non-profit organization designed to help children and families affected by Cystic Fibrosis. Claire's Place Foundation is named in honor of Claire Wineland, now a teenager, who has been living with cystic fibrosis her entire life.
Claire and her parents want other families to experience the benefit from the kind of support that they received and continue to get; hence, this is the motivation for the foundation. Claire's experiences have catapulted her into a position of being a spokesperson and an inspirational model for people living with this disease. She has documented and created videos on how to enjoy life with CF and live life to the fullest. Claire's Place Foundation is a way for Claire to give back and make meaning of what she has had to go through; the foundation is her way to enrich the human experience with hope, strength and joy.

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